A lot of your questions may be answered in the description box below.
The Book and Movie "Brain on Fire" #BrainOnFire, Susannah Cahalan, brought attention to a misunderstood and dangerous autoimmune disease of the brain (Anti-NMDAR Autoimmune Encephalitis). Susannah is a hero for telling her story!
Autoimmune disease of the brain is caused by inflammation. The body is attacking its own cells. The diagnosing doctor in the movie "Brain on Fire" termed the inflammation attacking the brain as 'a brain on fire'.
Brain autoimmunity comes in many forms, including the still controversial PANS, CANS, and PANDAS.
Getting a diagnosis of Autoimmune Encephalitis continues to be difficult. For Michialee, it took many months, doctor's visits, and hospitalizations. She began improving 3 days after starting high dose antibiotics. She is expected to need treatment for the next one to two years.
PANS - Pediatric Acute-onset Neuropsychiatric Syndrome
CANS- Childhood acute neuropsychiatric syndromes
PANDAS- Pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections
This vlog-style documentary chronicles Michialee Whitaker's journey being diagnosed with autoimmunity of the brain after being diagnosed with an encephalopathy. Her Cunningham Panel Test showed that she has two different anti-bodies attacking her brain. She has never been tested for Anti-NMDAR Autoimmune Encephalitis.
More information and Helpful links:
Autoimmune Encephalitis Alliance - https://www.youtube.com/user/AutoEncephAlliance/feed
PANDAS Network - https://www.youtube.com/channel/UCd7KKS_PZE4T1ZvMpV-NhuA
Note: This video also reviews and discusses the movie "Brain on Fire".
Let's be friends!
Doors In Time Instagram -
Emmarie's Instagram - https://www.instagram.com/doorsintime...
Heidi's Twitter -
About the Whitaker Family - DOORS IN TIME
The past 2 years have caused us to stretch our faith, our time, our talents, and our creativity as we suddenly found ourselves in the middle of two medical mysteries. In an extreme effort to get the help that we needed, we partnered with other YouTubers to bring awareness and find the answers that we so desperately sought.
Ours is the story of a YouTube miracle. We found advocates, answers, doctors, hospitals, and incredible support among the YouTube community. But the journey isn’t over. It has only just begun.
Please join us as we maneuver our new normal, find joy in the simple things in life, and navigate through the choices ahead of us.
We focus on the small and big miracles that have become a part of our daily lives. We bring awareness to the struggles of hard to diagnose patients. We show the determination of a family to make every day special and a celebration despite trials.
Dad - Rob, Mom- Heidi, Robby - 25 (Married to Natasha + Baby Andy), Avonlea- 24, Emmarie -21, Michialee - 16,
Jayce - 13, Cookie the Puppy (AKA Trouble!)
DOORS IN TIME
PO BOX 189
RIVERTON UT 84065